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| ....These past fifteen years have brought a lifetime of ups and downs. While I never expected my caregiving experience to last nearly so long, nor to affect me so long after it was over, I have no regrets. I have found this period to be life-defining, and part of a destiny I had never imagined. Like many other primary and solitary caregivers, I first experienced anger and resentment with some siblings who abandoned the task at hand and expressed very negative responses. However, I have come to see that matter in an entirely new light. If my siblings had been involved in Mother’s care, I would not have gained the satisfaction of completing such a huge task. Nor would I have been able to spend so much time with Mother and help her through the horrors of the disease. Nor would I have been able to experience the degree of unconditional love which grew so much between us during the caregiving process. In the end, I look back and see the battlefields we crossed, one after another. Through the maze and stress of medical, legal and other institutional issues, as well as the slings and arrows of the ever-ravaging Alzheimer’s, we survived and kept our souls intact. All those trying issues were like a series of military campaigns that had to be confronted before we made it through the war. Perhaps it was all just meant to be. I thank God for the silent help and strength which aided our journey. I thank my wife for her patience and support as she entered our lives only a couple of years after the struggle had begun. I’m grateful that Nancy and Bernice could enjoy each other before the ravages of Alzheimer’s dimmed that awareness. I thank my father for having the foresight and knowledge to choose Bernice as his wife, and knowing that she would be the best of mothers for their children. Most of all, I thank Mother for being a ceaseless teacher and consistent example of how a good life is lived—from the moment my eyes first opened until the moment her eyes last closed. Not that I always followed her example, but without it I would have been completely lost or lived a much poorer life. The Alzheimer’s journey is like living in another galaxy, and each Alzheimer’s case is somewhat different from the next, being its own solar system within that galaxy. Fortunately, in our solar system the hard times were augmented by a lot of smiles, laughter, and sparkling eyes. Mother’s bright and joyful spirit served as the ever- renewing.... |
Men are what their mothers made them.
For now, the best therapeutic tools we have for treating Alzheimer’s disease are conscientious caregivers. By far, the best medication we have is love.
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| CHAPTER 13 THE FUTURE— ALZHEIMER’S, NURSING HOMES, FAMILY CAREGIVING, AND ME |